Wednesday, February 18, 2009

Just Thinking

I have been very busy lately. My sister,Anna, has a very rare neurological disorder called transverse myelitis. It affects the sheath that protects the nerves coming from the spinal cord. She has a lesion at c-4 which is pretty high up. She has lost feeling in both her hands and arms. She has trouble gripping things,writing,zipping,buttoning,etc. I went to see her this past weekend and she is scared stiff. There is only 1 clinic in the US that specializes in this and it is in Baltimore. But they are opening a clinic in Dallas sometime in the next few weeks. She will be seen there but in the meantime she can only wait. I feel so helpless in that there is nothing I can do for her except try to find adaptive devices to make her life easier. So, please keep her in your thoughts and prayers.


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